Winner of the 2018 BMA Award Oncology Book of the Year! - Click here for a sample chapter

• a multidisciplinary review including the latest developments in person-centred cancer care from 90 experts and leaders
• hands-on guide to patient-centred and integrated care for hospital and community teams, GPs and allied care professionals, including case studies
• a valuable learning tool for doctors, nurses, graduate medical trainees, care managers and anyone involved in cancer care

“You treat a disease, you win, you lose. You treat a person, I guarantee you, you’ll win, no matter what the outcome.” Hunter Doherty “Patch Adams” MD

A broad and experienced team, including medical oncologists, psychologists and allied healthcare professionals, worked together to produce this practical guide to patient-centred and integrated cancer care. It provides a compendium of best practice, including 25 case studies to act as models for professionals to make decisions, either for individual patients or as the basis for policy across an organisation, planning area, region or country.

This guide is designed as a handbook for practising clinicians and professionals. It is also an excellent training tool, which will help new teams and clinical staff to align thinking, develop procedures, and adopt best practice.

Contents

Section One: Perspectives

1. Patient-Centred and Integrated Cancer Care, Peter Selby, Ruth E. Board, Galina Velikova

2. Monitoring of Symptoms, Toxicity and Functioning Using Patient-Reported Outcome Measures, Alexandra Gilbert, Peter Selby, Galina Velikova

3. Assessment of Psychological Distress in Cancer, Jane Younger

4. Patient-Centred Decision Making: Communication Challenges, Lesley Fallowfield, Peter Selby

5. Patient Engagement and Empowerment: Key Components of Effective Patient-Centred Care, Hugh Butcher, Peter Selby

6. How Can the GP Support the Patient through the Whole Cancer Journey? Sinead Clarke, Pete Nightingale, Anthony Cunliffe

7. Making a Difference: the True Value of Voluntary Sector and NHS Collaboration for Cancer Patients, Carers and Families, Laura Lee

8. Cancer Survivorship, Lynn Calman, Claire Foster

9. Survivorship and Rehabilitation: Recommendations from a European Perspective, Tit Albreht, Christine Berling, Claudia Ferrari, Stein Kaasa, Luzia Travado

10. Improving Quality of Life after Cancer Treatment, Jane Maher, Lesley Smith, Louisa Petchey

11. Integration of Palliative Care Support into Oncology Practice, Lucy Ziegler, Michael I. Bennett

12. Integration of Supportive Care into Oncology Clinics Ensures Best Practice for Patients with Metastatic Cancer, Tracey Coleby, Lorraine Turner, Andrew M. Wardley

13. Integration of Cancer Care between Primary Care and Hospitals, Peter Selby, Geoff Hall, Ladislav Dusek, Fotios Loupakis, Lucio Luzzatto, Tit Albreht, Richard D. Neal, Rob Turner, Sean Duffy

14. Psychosexual Difficulties after Cancer, Isabel White, Justin Grayer

15. Social Difficulties of Cancer Patients, Penny Wright, Peter Selby

16. Complementary Therapies in Patient-Centred and Integrated Cancer Care, Jacqui Stringer

17. Fertility Issues in Cancer Treatment, Rebecca Lee, Anne Armstrong

18. Embedding Patient and Public Involvement and Engagement in a Cancer Research Centre, Jim Fitzgibbon, Kate Cleary, Annmarie Nelson

SECTION TWO Case studies

1. A Young Adult with Sarcoma: a Case of Complexities, Anna Olsson-Brown, Jane Younger

2. Cancer of Unknown Primary Treated with Palliative Chemotherapy and Hospice Care, Nicola Hughes, Daniel Swinson, Emma Lowe

3. A Patient with Advanced Oesophageal Cancer Requiring Interventional Radiology and Palliative Care Input, Mark Openshaw, Sam Khan, Meera Chauhan, Laura Clipsham, Anne Thomas

4. A Metastatic Breast Cancer Patient Who Was Suicidal and Refused Treatment, Kok Haw Jonathan Lim, Bethan Daniel, Tracey Coleby, Andrew M. Wardley

5. Metastatic Adenocarcinoma of the Lung, Vinton Cheng, Denis Talbot

6. Lessons Learnt from a Deaf Patient with Ovarian Cancer, Nicola Flaum, Jurjees Hasan

7. A Young Man with Undiagnosed Autistic Spectrum Disorder and Hodgkin’s Lymphoma, Alexandra R. Lewis, Kim Linton

8. A T3N1 Oesophageal Adenocarcinoma Patient Refusing Curative Surgery for Seemingly Irrational Reasons, Maung Maung Myat Moe, Clare Kane, Cate Simmons, Lucinda Melcher

9. A Patient with Brain Cancer: from Diagnosis to Treatment, Yin Zhou 

10. A Woman Presenting to Primary Care with Painful Bone Metastases, Lucy Flanders, Mulyati Mohamed, Pauline Leonard

11. Management of Psychological and Behavioural Challenges in a Patient with Glioblastoma, Suryanarayana Kakkilaya, Jane Younger

12. Psychological Therapy to Aid Tablet Taking in Cancer Treatment, Lesley Seddon, Fiona James, Ruth E. Board

13. Treatment Challenges in a Patient with Metastatic Breast Cancer, Helen Adderley, Elena Takeuchi

14. Treatment of Cervical Cancer during Pregnancy and Management of Late Effects, Alexandra Gilbert, Kate Cardale, Galina Velikova

15. A Patient with Prostate Cancer with Ureteric Obstruction and Complex Social Issues, Charlotte Richardson, Iva Damyanova

16. Integrated Care When Cancer Is Diagnosed in Pregnancy, Richard Simcock, Pete Wallroth

17. Integrated Care in the Treatment of Head and Neck Malignancy, Siobhan Morrison, Andrew Fishburn, Anne Carter, Rachel Hewitson, Katy Everson, Muthiah Sivaramalingam

18. Vulvovaginal Pain after Breast Cancer Treatment, Josie Butcher

19. Use of Patient-Reported Outcome Measures to Enhance Follow-Up after Germ Cell Tumour Treatment, Oana C. Lindner, Dulani Ranatunge, Dan Stark

20. A Young Woman with Advanced Gastric Cancer, Gemma Dart, Alison Young

21. A Patient with Metastatic Breast Cancer, Alicia-Marie Conway, Elena Takeuchi

22. A Patient with Melanoma, Severe Psychosis on Steroids, and Multiple Other Issues, Hariharan Kuhan, Gail Prout, Paul Nathan

Contributors

Dr Helen Adderley, Registrar in Medical Oncology, Christie NHS Foundation Trust, Manchester

Assistant Professor Tit Albreht, Senior Health Services Researcher, Head of Centre for Health Care, National Institute of Public Health of Slovenia, Ljubljana, Slovenia

Dr Anne Armstrong, Consultant in Medical Oncology and Honorary Senior Lecturer, Christie NHS Foundation Trust, Manchester

Professor Michael I. Bennett, St Gemma’s Professor of Palliative Medicine, Leeds Institute of Health Sciences, University of Leeds, Leeds

Dr Christine Berling, Head of International and European Affairs, Directorate General for Health, Ministry of Health and Solidarity, Paris, France

Dr Ruth E. Board, Consultant in Medical Oncology, Lancashire Teaching Hospitals NHS Foundation Trust, Preston; Honorary Senior Lecturer, University of Manchester, Manchester

Mr Hugh Butcher, Cancer Patient Advocate and University of Leeds Visiting Research Fellow (Patient and Public Involvement), Leeds Institute of Cancer and Pathology, University of Leeds, Leeds

Dr Josie Butcher, Consultant and Director, Psychosexual Medicine and Therapy Service, Cheshire and Wirral Partnership NHS Foundation Trust, Chester

Dr Lynn Calman, Senior Research Fellow, Macmillan Survivorship Research Group, Faculty of Health Sciences, University of Southampton, Southampton

Dr Kate Cardale, Consultant in Clinical Oncology, Leeds Cancer Centre, St James’s University Hospital, Leeds Teaching Hospitals NHS Trust, Leeds

Mrs Anne Carter, Advanced Oncology Team Leader Dietitian, Lancashire Teaching Hospitals NHS Foundation Trust, Preston

Dr Meera Chauhan, Clinical Research Fellow, University of Leicester, Leicester

Dr Vinton Cheng, Clinical Research Fellow, CRUK/MRC Oxford Institute for Radiation Oncology, Department of Oncology, University of Oxford, Oxford

Dr Sinead Clarke, GP Adviser, Macmillan Cancer Support, London

Miss Kate Cleary, Administrative Officer, Wales Cancer Research Centre, Cardiff University, Cardiff

Dr Laura Clipsham, Consultant in Palliative Medicine, Leicester Royal Infirmary, University Hospitals of Leicester NHS Trust, Leicester

Mrs Tracey Coleby, Macmillan Breast Palliative Care Clinical Nurse Specialist, Christie NHS Foundation Trust, Manchester

Dr Alicia-Marie Conway, Specialist Registrar in Medical Oncology, Christie NHS Foundation Trust, Manchester

Dr Anthony Cunliffe, Macmillan Lead GP Adviser for Prevention and Diagnosis, Macmillan Cancer Support, London

Dr Iva Damyanova, Consultant in Medical Oncology, Mid-Yorkshire Hospitals NHS Trust, Wakefield

Ms Bethan Daniel, Macmillan Secondary Breast Clinical Nurse Specialist, Christie NHS Foundation Trust, Manchester

Dr Gemma Dart, Registrar in Medical Oncology, Leeds Cancer Centre, St James’s University Hospital, Leeds Teaching Hospitals NHS Trust, Leeds

Professor Sean Duffy, West Yorkshire and Harrogate Cancer Alliance Lead, Leeds

Dr Ladislav Dusek, Head of Department, Institute for Biostatistics and Analyses, Faculty of Medicine, Masaryk University, Czechia

Mrs Katy Everson, Specialist Dietitian in Oncology, Royal Preston Hospital, Lancashire Teaching Hospitals NHS Foundation Trust, Preston

Professor Dame Lesley Fallowfield, Director, Sussex Health Outcomes Research and Education in Cancer (SHORE-C), University of Sussex, Brighton

Dr Claudia Ferrari, Head of Department of Care Organization, French National Cancer Institute (INCa), Boulogne Billancourt, France

Mr Andrew Fishburn, Lead Clinical Nurse Specialist in Head and Neck, Lancashire Teaching Hospitals NHS Foundation Trust, Preston

Dr Jim Fitzgibbon, Volunteer Lead Research Partner, Wales Cancer Research Centre, Cardiff University, Cardiff

Dr Lucy Flanders, Core Medical Trainee, National Medical Director’s Clinical Fellow, NHS England, London

Dr Nicola Flaum, Specialist Registrar in Medical Oncology, Christie NHS Foundation Trust, Manchester

Professor Claire Foster, Professor of Psychosocial Oncology and Director of Macmillan Survivorship Research Group, Faculty of Health Sciences, University of Southampton, Southampton

Dr Alexandra Gilbert, NIHR Academic Clinical Lecturer in Clinical Oncology, University of Leeds; Leeds Cancer Centre, St James’s University Hospital, Leeds Teaching Hospitals NHS Trust, Leeds

Dr Justin Grayer, Principal Clinical Psychologist and Psychosexual and Relationship Therapist, Lead of Adult Psychological Support Team, Royal Marsden NHS Foundation Trust, London

Dr Geoff Hall, Senior Lecturer in Medical Oncology, Leeds Institute of Cancer and Pathology, University of Leeds, Leeds; Leeds Cancer Centre, St James’s University Hospital, Leeds Teaching Hospitals NHS Trust, Leeds

Dr Jurjees Hasan, Consultant in Medical Oncology, Christie NHS Foundation Trust, Manchester

Miss Rachel Hewitson, Macmillan Speech and Language Therapist, Lancashire Teaching Hospitals NHS Foundation Trust, Preston

Dr Nicola Hughes, Academic Clinical Fellow in Medical Oncology, Leeds Cancer Centre, St James’s University Hospital, Leeds Teaching Hospitals NHS Trust, Leeds

Dr Fiona James, Foundation Doctor, Royal Preston Hospital, Lancashire Teaching Hospitals NHS Foundation Trust, Preston

Professor Stein Kaasa, Head of Department of Oncology, Oslo University Hospital and University of Oslo, Oslo, Norway

Dr Suryanarayana Kakkilaya, Consultant in Psychiatry, Elysium Healthcare, Warrington

Dr Clare Kane, Registrar in Clinical Oncology, North Middlesex University Hospital NHS Trust, London

Dr Sam Khan, Clinical Research Fellow, University of Leicester, Leicester

Dr Hariharan Kuhan, Specialist Registrar in Medical Oncology, Mount Vernon Cancer Centre, Northwood, Middlesex

Ms Laura Lee, CEO, Maggie’s Centres, London

Dr Rebecca Lee, Specialist Registrar, Christie NHS Foundation Trust, Manchester

Dr Pauline Leonard, Consultant in Medical Oncology, Whittington Health NHS Trust, London

Dr Alexandra R. Lewis, Specialist Registrar in Medical Oncology, Christie NHS Foundation Trust, Manchester

Dr Kok Haw Jonathan Lim, Specialty Trainee in Medical Oncology, Christie NHS Foundation Trust, Manchester

Dr Oana C. Lindner, Research Fellow, Patient-Centred Outcomes Research Group, University of Leeds, Leeds

Dr Kim Linton, Consultant in Medical Oncology, Christie NHS Foundation Trust, Manchester

Dr Fotios Loupakis, Consultant in Medical Oncology, Azienda University Hospital, Pisa, Italy

Dr Emma Lowe, Consultant in Palliative Medicine, Mid Yorkshire Hospitals NHS Trust, Wakefield

Professor Lucio Luzzatto, Honorary Professor of Haematology, University of Florence, Florence, Italy

Dr Jane Maher, Joint Chief Medical Officer, Macmillan Cancer Support, London; Honorary Consultant in Clinical Oncology, Mount Vernon Cancer Centre, Northwood, Middlesex

Dr Lucinda Melcher, Consultant in Clinical Oncology, North Middlesex University Hospital NHS Trust, London

Dr Maung Maung Myat Moe, Consultant in Medical Oncology, North Middlesex University Hospital NHS Trust, London

Dr Mulyati Mohamed, Specialty Doctor in Medical Oncology, Whittington Health NHS Trust, London

Dr Siobhan Morrison, Registrar in Clinical Oncology, Christie NHS Foundation Trust, Manchester

Dr Paul Nathan, Consultant in Medical Oncology, Mount Vernon Cancer Centre, Northwood, Middlesex

Professor Richard D. Neal, Professor of Primary Care Oncology, University of Leeds, Leeds

Dr Annmarie Nelson, Scientific Director, Marie Curie Research Centre, Cardiff University, Cardiff

Dr Pete Nightingale, GP Adviser End of Life Care, Macmillan Cancer Support, Lancaster

Dr Anna Olsson-Brown, Registrar in Medical Oncology, Clatterbridge Cancer Centre NHS Foundation Trust, Birkenhead; Clinical Research Fellow, University of Liverpool, Liverpool

Dr Mark Openshaw, Clinical Research Fellow, University of Leicester, Leicester

Dr Louisa Petchey, Senior Policy Analyst, Macmillan Cancer Support, London

Ms Gail Prout, Skin Cancer Clinical Nurse Specialist, Mount Vernon Cancer Centre, Northwood, Middlesex

Dr Dulani Ranatunge, Specialist Registrar in Medical Oncology, Leeds Cancer Centre, St James’s University Hospital, Leeds Teaching Hospitals NHS Trust, Leeds

Dr Charlotte Richardson, Registrar in Medical Oncology, Leeds Cancer Centre, St James’s University Hospital, Leeds Teaching Hospitals NHS Trust, Leeds

Dr Lesley Seddon, Consultant in Health Psychology (Oncology) and Head of Psychology Services, Royal Preston Hospital, Lancashire Teaching Hospitals NHS Foundation Trust, Preston

Professor Peter Selby, Professor of Cancer Medicine and Associate Dean, Leeds Institute of Cancer and Pathology, University of Leeds, Leeds; Leeds Cancer Centre, St James’s University Hospital, Leeds Teaching Hospitals NHS Trust, Leeds

Dr Richard Simcock, Consultant in Clinical Oncology, Sussex Cancer Centre, Brighton and Sussex University Hospitals NHS Trust, Brighton

Mrs Cate Simmons, Upper GI and CUP Clinical Nurse Specialist, Princess Alexandra Hospital, Harlow

Dr Muthiah Sivaramalingam, Consultant in Clinical Oncology, Royal Preston Hospital, Lancashire Teaching Hospitals NHS Foundation Trust, Preston

Dr Lesley Smith, Consequences of Treatment Programme Manager, Macmillan Cancer Support, London

Dr Dan Stark, Consultant in Medical Oncology, Leeds Cancer Centre, St James’s University Hospital, Leeds Teaching Hospitals NHS Trust, Leeds

Dr Jacqui Stringer, Clinical Lead, Tissue Viability and Complementary Health and Wellbeing, Christie NHS Foundation Trust, Manchester; Honorary Lecturer, University of Manchester, Manchester

Dr Daniel Swinson, Consultant in Medical Oncology, Leeds Cancer Centre, St James’s University Hospital, Leeds Teaching Hospitals NHS Trust, Leeds

Dr Elena Takeuchi, Consultant in Medical Oncology, Christie NHS Foundation Trust, Manchester

Professor Denis Talbot, Professor of Cancer Medicine, Churchill Hospital, Oxford University Hospitals NHS Foundation Trust, Oxford

Professor Anne Thomas, Professor of Cancer Therapeutics, University of Leicester, Leicester

Dr Luzia Travado, Head of Psycho-Oncology, Champalimaud Clinical Centre, Champalimaud Foundation, Lisbon, Portugal

Miss Lorraine Turner, Advanced Nurse Practitioner in Experimental Cancer Medicine, NIHR/Cancer Research UK Christie Clinical Research Facility, Christie NHS Foundation Trust, Manchester

Dr Rob Turner, Operational Lead Cancer Clinician, Leeds Cancer Centre, Leeds Teaching Hospitals NHS Trust, Leeds

Professor Galina Velikova, Professor of Psychosocial and Medical Oncology, Leeds; Institute of Cancer and Pathology, University of Leeds, Leeds; Leeds Cancer Centre, St James’s University Hospital, Leeds Teaching Hospitals NHS Trust, Leeds

Mr Pete Wallroth, CEO/Founder, Mummy’s Star charity (www.mummysstar.org)

Professor Andrew M. Wardley, Medical Director, NIHR Cancer Research UK Christie Clinical Research Facility, Christie NHS Foundation Trust, Manchester; Division of Cancer Sciences, University of Manchester, Manchester

Dr Isabel White, Clinical Research Fellow in Psychosexual Practice, Royal Marsden NHS Foundation Trust, London

Dr Penny Wright, Associate Professor in Psychosocial Cancer Care, Leeds Institute of Cancer and Pathology, University of Leeds, Leeds

Dr Alison Young, Consultant in Medical Oncology, Leeds Cancer Centre, St James’s University Hospital, Leeds Teaching Hospitals NHS Trust, Leeds

Dr Jane Younger, Consultant in Psychological Medicine, Clatterbridge Cancer Centre NHS Foundation Trust, Birkenhead

Dr Yin Zhou, GP and Clinical Research Fellow, Primary Care Unit, University of Cambridge, Cambridge

Dr Lucy Ziegler, Academic Fellow, Leeds Institute of Health Sciences, University of Leeds, Leeds